You, Me & TTP

‘YOU, ME & TTP’ is a 30 minute film made by patients living with TTP supported by their clinical team, families and friends. The film follows a number of patients speaking honestly about their personal journeys and features some of the long term neuropsychological symptoms and isolation that some patients living with TTP experience. It portrays the spectrum of how patients are affected by the diagnosis of a rare disorder, and is aimed at offering comfort and signposting for patients and carers affected by the condition.

The film also includes an animation of ‘What is TTP?’ and carries a link to an information pack providing further information about the specialist centres and how to make contact with your local specialist team and the TTPNetwork.

The making of the film was funded by a Wellcome Trust grant and The Liverpool TTP Patient Welfare Charity fund. Director, Alex Blogg from New Leaf, has a track record in making healthcare documentaries, and has sensitively worked with the Liverpool TTP Centre and patients to deliver a film created by patients for patients.

Jo McIntyre, patient and lead for the UK Patient TTPNetwork describes ‘YOU,ME & TTP as “captivating, showing you that you do not need to be alone with TTP”. Patients are keen that the film is made available as widely as possible to reach out firstly to patients with TTP, but also those supporting TTP care - both in acute and primary healthcare, mental health, friends and family, employers and ultimately all those involved in supporting rare diseases like TTP.

The film is now available freely via the TTPNetwork YouTube channel and we trust that you will agree that it reflects the honesty and courage of the patients featured - keen to share their stories with fellow patients and healthcare professionals.

Click below to watch the film

https://www.youtube.com/watch?v=NjUgYiRWY88

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