TTPNetwork is a registered charity based in the UK.
TTPNetwork is the UK's primary patient support group for patients diagnosed with Thrombotic Thrombocytopenic Purpura (TTP).
We provide advocacy, information and support for patients and their families, and we offer support to health care professionals.
We are UK based and our support is for those in the UK and Ireland, but our reach is far wider.
We are a key voice in the public health sector and regularly work with other stakeholders to improve knowledge and services for TTP patients.
We are committed to ensuring patients with TTP receive the best care available to them and the peer support they require to help understand and live with their diagnosis.
Professor Marie Scully MBE
We are privileged and honoured to have Professor Marie Scully, as our Patron.
Professor Scully is an inspirational Consultant Haematologist at University College London.
Prof. Scully has been an unwavering champion of TTPNetwork for many years and her invaluable support has made a huge impact on raising awareness of our work and the information and support we have been able to offer patients and their families.
for 25 years TTPNetwork has been the primary peer support for patients
TTPNetwork supports over 900 people via our Facebook platform, website and email.
Are you a TTP patient? Or perhaps a family member or close friend of someone diagnosed with TTP?
Are you a healthcare professional who wants to know more about our work?
Whoever you are, get in touch. We'd love to hear from you.
