HOME INTERACTIVE INFORMATION PLEDGE ABOUT US LINKS
 
Jo

Jo is the groups manager (and originator), she has spent many years and hours keeping the members of TTPNetwork in contact be it by newsletter or the new fangled website.A sufferer herself she has single handedly joined many people together with similar experiences so they can share and gain common friendships over this awful disease.

In short Jo is the one reason why this website is here and the people using it have become friends.
Dale 

This is me(the slightly taller one in the photo) , i'm the webmaster for this site, (all the spelling mistakes are my fault). 

I update the site as much as my normal job and social life allow. I am a certified systems engineer, and also love music (of the loud and lary varity), I also play Bass and Normal guitar, and have been in various bands for the last 10 years or so( although im writing my own stuff on my computer now). Oh yes and I'm 25 and live in the Reading Area. 
Jeannie

Hi everyone my names Jeannie, this is an older piccie of me at Samos airport Greece awaiting my flight back to good old Blighty…

This was in the October before my diagnosis in the March and before the good doses of steroids, mind you I’ve never been twiggy hahaha…

I live in Liverpool, UK and I enjoy relaxing, reading and I write poetry, and I work full time in health.

I was diagnosed with TTP in March 2000 when I had 3 mini strokes, I then relapsed 18 months later, my 3rd relapse was in November 2003.

I joined the network shortly after my 2nd relapse and I have met (thru cyber space) so many lovely people whom have made a huge impact on my life, and I wish them and new TTP’ers HIGH PLATELETS always.
Kirstin (Taffy)

Hi I'm Kirstin  (Taffy), and this is a pic of me and my miracle baby Gwion, taken around his first birthday this year.

 
I live in Conwy, North Wales, with my husband Rhodri and our son Gwion.  I'm a midwife. I enjoy music, reading and cross stitch, though Gwion takes up most of my time now.
 
I developed TTP in Dec 2000, when I was 25 weeks pregnant with my first son, Ifan, who unfortunately was stillborn 2 days after diagnosis. After further investigations, it was found I was missing the vWF cleaving protase enzyme, so TTP could come back at any time, especially in pregnancy. I got pregnant again in June 2002, and with fortnightly, then weekly plasma pheresis I successfully got through another pregnancy, without any problems, and Gwion was born on 1st Feb 2003 (01/02/03!) 
 
I joined the group in 2001 and it has been great finding out there are more people who understand what it's like to have TTP and it's a great support group.