In 1995, aged twenty four, Jo McAuliffe was diagnosed with a rare blood condition ? Thrombotic Thrombocytopenic Purpura or TTP.
Jo felt lonely and confused and wanted to speak to others who had been in a similar situation. She quickly found that as the condition was so rare, there were no support groups or opportunities to contact others. Even her consultant had only ever treated one patient with the condition and that was 10 years earlier.
In 1998, eighteen months after her original diagnosis Jo wrote to the UK magazine, ?Woman?. On May 11th 1998 ?Woman? magazine printed a small article on their health page. From that article, she received over 15 letters. Most were from people with conditions similar but not identical to TTP but a few were from people who had been diagnosed with TTP.
Here is the article from Woman magazine 11th May 1998.
The Network was established that year and over the following years Jo sent out quarterly newsletters by post to all those who corresponded with her. However it soon became apparent that there was not enough new information to put into regular newsletters and since the internet was becoming much more accessible with internet facilities in most libraries, Jo felt it best to set up a website.
TTPNetwork had a dedicated website in 1999 and was updated in 2001 to include an MSN Messageboard which has been regularly used ever since. In 2002 we took the decision to cease writing newsletters and postal correspondence and to rely solely on the website, email and message boards as a means of communication.
In 2007 we updated the website and re launched with a new logo which was designed by Candida Kennedy (for more details of Candida?s work or to contact Candida? email via firstname.lastname@example.org?)
We hope that you like the website and find it informative. If you have any comments about the content please contact us by email (email@example.com)
If you have any questions or queries about your health or the medical condition TTP please seek advice from a medical professional such as your doctor or consultant. The authors of this website are not medical professionals.
Please treat any information that you read on any website with caution. Although we try to ensure that any information printed within the TTPNetwork website is verified by a qualified expert we cannot be held responsible for any inaccuracies or omissions.
We are not responsible for the postings made by contributors to the message board.